Resources

Articles

Diagnostic and prognostic value of human prion detection in cerebrospinal fluid.
Ann Neurol. 2017 Jan;81(1):79-92. doi: 10.1002/ana.24833.

Population screening for variant Creutzfeldt-Jakob disease using a novel blood test: diagnostic accuracy and feasibility study.
JAMA Neurology. April 2014;71(4)421-428.
This study indicates the prototype blood-based variant Creutzfeldt-Jakob (vCJD) disease assay has sufficient sensitivity and specificity to support using the assay to screen for vCJD infection in prion-exposed populations.

Detection of prion infectivity in variant Creutzfeldt-Jakob disease: a blood-based assay.
Lancet. February 2011;377:487-493.
These initial studies provide a prototype blood test for diagnosis of vCJD in symptomatic individuals, which could allow development of large-scale screening tests for asymptomatic vCJD infection.

Creutzfeldt-Jakob Disease Surveillance and Diagnosis [PDF – 69KB]
Clinical Infectious Diseases. 2005;41:834–836. This article is in the public domain, and no copyright is claimed.

Creutzfeldt-Jakob Disease Not Related to a Common Venue – New Jersey, 1995 – 2004
MMWR. 2004;53(Early Release):1-4.

Creutzfeldt-Jakob Disease in Unusually Young Patients Who Consumed Venison.
Archives of Neurology, 2001;58:1673-1678.

Creutzfeldt-Jakob Disease in the United States: 1979-1998.
Journal of the American Medical Association. 2000;284(18).

Transmissible Spongiform Encephalopathies in Humans [PDF – 183KB]
Annu. Rev. Microbiol. 1999;53:283–314.

WHO Infection Control Guidelines for Transmissible Spongiform Encephalopathies: Report of a WHO Consultation, Geneva, Switzerland, 23-26 March 1999
From the World Health Organization (WHO).

Creutzfeldt-Jakob Disease Associated with Cadaveric Dura Mater Grafts.
MMWR. November 14, 1997;46(45):1066-1069.

Creutzfeldt-Jakob Disease in the United States, 1979-1994: Using National Mortality Data to Assess the Possible Occurrence of Variant Cases.
EID. October-December 1996;2(4):333-337.

Surveillance for Creutzfeldt-Jakob Disease
MMWR. August 9, 1996;45(31):665-668.

Links to Organizations outside CDC

California CJD Surveillance Project
The California CJD Surveillance Project conducts enhanced surveillance for CJD, variant CJD and other emerging forms of CJD in the state of California.

University of California, San Francisco: Memory and Aging Center
Creutzfeldt-Jakob Disease Website

Creutzfeldt-Jakob Disease Foundation, Inc.

The UK Creutzfeldt-Jakob Disease Surveillance Unit
University of Edinburgh, Scotland

New York CJD Enhanced Surveillance Program
New York State Department of Health, Wadsworth Center. The CJD Enhanced Surveillance program assesses the epidemiology of CJD and monitors the possible occurrence of variant CJD in New York State.

New York City, CJD Information for Health Care Providers
New York City Department of Health and Mental Hygiene

Texas CJD Information
Texas Department of Health Services