NCBDDD works with many state and local health departments to investigate pandemic flu among pregnant women, children, and people with disabilities. This work leads to swift action to develop guidance and recommendations for these vulnerable populations.
The Duchenne muscular dystrophy (DMD) Care Considerations guide is published.
NCBDDD and the National Heart Lung and Blood Institute establish a pilot surveillance system for sickle cell disease and thalassemia called the Registry and Surveillance for Hemoglobinopathies (RuSH).
2011
Dr. Coleen A. Boyle is named director of NCBDDD.
2012
NCBDDD conducted the first study to look at the costs and health outcomes (cost-effectiveness) of newborn screening for early identification of children with a critical congenital heart defect (CCHD).
2013
NCBDDD launches Birth Defects COUNT, a global initiative to reduce death and disability due to neural tube defects.
The Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) is announced. This study further examines findings from the National Birth Defects Prevention Study and follows up on leads to understand more about what causes birth defects and how to prevent them.
2014
NCBDDD’s Autism and Developmental Disabilities Monitoring Network finds an average of 1 in 68 children are affected by autism spectrum disorder.
Launched a nationwide report on adults with disabilities and physical activity. CDC’s Vital Signs™ : “Adults with Disabilities – Physical Activity is for Everybody” presented data showing that 1 in 2 adults with a disability get no aerobic physical activity and that people with disabilities who had a recommendation from a doctor or health professional were more likely to be physically active.
2015
Closed the gap in the early identification of deaf and hard of hearing infants by launching EHDI-DASH (Early Hearing Detection & Intervention Data Analysis and Statistical Hub), an interactive dashboard that presents a range of data about the early identification of deaf and hard of hearing infants across the United States.
2016
CDC published evidence concluding that Zika virus infection during pregnancy is a cause of microcephaly (small head and brain) and other severe fetal brain defects. CDC and partners developed and implemented a multifaceted communication campaign called “This is How We Stop Zika.” This campaign was aimed at educating pregnant women and communities in U.S. territories about Zika prevention.
Provided new data on alcohol use during pregnancy, which estimated more than 3 million U.S. women are at risk for an alcohol-exposed pregnancy.
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