Hereditary Breast and Ovarian Cancer (HBOC) Tools

Tools for Bidirectional Cancer Registry Reporting to Identify Individuals at Risk for Hereditary Breast and Ovarian Cancer syndrome

The following materials were developed to support state programs using bidirectional cancer registry reporting to identify individuals at risk for Hereditary Breast and Ovarian Cancer syndrome. State health departments are encouraged to customize the materials to meet their needs. Materials are categorized by those intended for patients and for healthcare providers, but materials may be suitable for multiple audiences. Please note that some materials will need to be filled out with state-specific information, as noted below.

Information for Patients

• Hereditary Breast and Ovarian Cancer Syndrome: A Guide for Patients and Their Families
• Brochure on Talking to Your Family About Your Diagnosis of Hereditary Breast and Ovarian Cancer Syndrome [PPT – 302 KB]
• Sample Letter for Informing Your Family Members about Your BRCA1 or BRCA2 Mutation [DOC 26.2 KB]
• List of Cancer Genetic Specialists for Your State or Region(Please note that state programs will need to complete this form.)
• What You Need to Know About Cancer Registries: Frequently Asked Questions for Patients and Their Families

Information for Providers

• This slide set is intended to be a resource for state health departments to use when presenting to hospitals and other institutions. States are welcome to select and modify slides to use and are not expected to use the entire set in a single presentation.
• Hereditary Breast and Ovarian Cancer Syndrome: Fact Sheet for Healthcare Professionals
• Evidence-based Practice Guidelines Supporting Genetic Susceptibility Testing for Hereditary Breast and Ovarian Cancer Syndrome
• Bidirectional cancer registry reporting to identify patients at high risk for hereditary cancer syndromes: what providers and institutions need to know. Video for educational outreach to providers and institutions in states that have bidirectional cancer registry reporting programs in place.

Reporting Tools

• Sample Hospital and Medical Center Cancer Genetics Data Report on Potential Hereditary Breast and Ovarian Cancer Syndrome-Related Cancers(Please note that state programs will need to complete this form.)

CDC tools and information on HBOC Tier 1

CDC Medscape Expert Commentary on Hereditary Breast and Ovarian Cancer: BRCA and Your Patient

CDC Medscape Expert Commentary on Genetics and BRCA in Primary Care

CDC Medscape Expert Commentary on a Tiered Approach to Integrating Genomics Into Your Practice

CDC Blog: What Gets Measured Gets Done: Genomics, Surveillance Indicators and Healthy People 2020

CDC Blog: From Genetic Counseling in Individuals to Cascade Screening in Populations: An Emerging Role for Public Health Practice

CDC Blog: New Strategies for Public Health Genomics Beyond Newborn Screening

CDC Blog: Evidence Matters in Genomic Medicine—Round 3: Integrating Family Health History into Clinical Preventive Services

CDC Blog: Peeling the Pyramid, Scaling the Onion—How to Implement Genomic Medicine

CDC Public Health Genomics implementation page

Video produced in partnership with CDC: Cascade Genetic Screening and Public Health Practice: An Idea Whose Time Has Come

CDC Classification of Genomic Applications by Levels of Evidence

 Top of Page