First Meeting

February 18-20, 2002: Washington, D.C.

 

Overview

Representatives of national statistical agencies and international organizations of people with disabilities participated in 3 days of sessions directed toward developing agreement on the nature of a global measure of disability to be recommended for use in censuses and surveys in the world community. The group also sought to develop an agenda for future meetings by prioritizing the most pressing issues in disability measurement and data collection.

 

Agenda

• Agenda - First Meeting of Washington Group on Disability Statistics [PDF - 37 KB]

 

Objectives

• Current Objectives, as Modified at the First Meeting

 

Papers and Presentations

• Introduction and Overview
  The first session provided a welcome and review of the conclusions from the original meeting, United Nations International Seminar on the Measurement of Disability, as well as goal setting for the first meeting.
  • Meeting Organization [PPT - 39 KB]
    presented by Jennifer Madans
  • UN International Seminar on Measurement of Disability June 2001 [PPT - 72 KB]
    presented by Barbara Altman
• Purpose of Measurement
  Select attendees, representing both developed and developing nations, described disability measurement in their societies.
  • Information Needs and ICF: Italian Experience [PPT - 115 KB]
    presented by Elena De Palma
  • Disability: The Case of Hungary [PPT - 51 KB]
    presented by Eva Gardos
• An Examination of the ICF Model
  The ICF model and its relationship to disability measures was discussed.
  • The ICF and Statistics on Disability and Health [PPT - 619 KB]
    presented by Marguerite Schneider
  • Overview and Recent Developmental Work in Europe [PPT - 286 KB]
    presented by Emmanuelle Cambois (Euro-Reves)
  • The ICF Model and Survery-Instruments [PPT - 103 KB]
    presented by Niels Rasmussen
• U.N. Standard Disability Tables
  Concepts, definitions, and classifications of disability were reviewed as well as the suggested approach to collecting data on disability in censuses.
  • Revising the United Nations Census Recommendations on Disability [PPT - 80 KB]
    presented by Margaret Mbogoni and Angela Me, United Nations Statistics Division
• Global Measures of Disability
  This session focused on the types and numbers of questions that could be useful in census formats. The impact of the cut point associated with limited questions on estimates of disability was of particular concern.
  • Australian Experience in Developing Disability Questions for the Census [PPT - 130 KB]
    presented by Joanne Hillerman
  • Disability Census Questions, the Perspective of Developing Countries [PPT - 69 KB]
    presented by Margaret Mbogoni, United Nations Statistics Division
• The Relationship of Global Measures to the ICF
  This session examined the relationship of disability measures currently in use to the ICF.
  • Global Measures of Disability: Statistics Canada’s Experience So Far... [PPT - 73 KB]
    presented by Renee Langlois, Statistics Canada
  • ABS Approach to Collecting Disability Data and Relationship to the ICF: A joint paper prepared by the Australian Bureau of Statistics (ABS) and the Australian Institute of Health and Welfare (AIHW) [PPT - 130 KB]
    presented by Joanne Hillermann
• Exploring the Confounding Function of Assistive Device Use
  This session explored the identification of disability and whether the lack of specification of assistive device use alters a true count of what is happening within a population. Does the lack of accurate consideration of all devices and their use compromise our measures? How does this impact on global indicators?
  • Exploring the Impact of Assistive Device Use on Disability Measurement [PPT - 125 KB]
    presented by Jennifer Madans
• What are the Unique Cultural Practices that Influence the Nature of the Environment or Prescribe or Proscribe Participation?
  To ask participation questions in a culture that prohibits certain types of participation to certain members of the population is an exercise in futility. These presentations address the cultural attitudes within which the questions must be framed. Does this problem constitute a barrier to collecting comparable data?
  • Cultural Practices and Environment and Participation Assessment [PPT - 138 KB]
    presented by Marguerite Schneider
• What are the Unique Cultural Issues that Act as Barriers to Collecting Data? Are There Common Barriers to Data Collection that Occur Cross-Culturally?
  • Language and Cultural Issues in Surveys of the European Union [PPT - 63 KB]
    presented by H. Van Oyen, Scientific Institute of Public Health, Brussel
  • Disability Related Question in Indian Census [PPT - 148 KB]
    presented by by V.M. Tamhane
• Summary Report to the UN Statistical Commission (33rd Session met March 5-8, 2002)
• Final Report of the First Meeting [PDF - 80 KB]

 

Introduction and Overview

The first session provided a welcome and review of the conclusions from the original meeting, United Nations International Seminar on the Measurement of Disability, as well as goal setting for the first meeting.

• Meeting Organization [PPT - 39 KB], presented by Jennifer Madans
• UN International Seminar on Measurement of Disability June 2001 [PPT - 72 KB], presented by Barbara Altman

 

Purpose of Measurement

Select attendees, representing both developed and developing nations, described disability measurement in their societies.

• Information Needs and ICF: Italian Experience, presented by Elena De Palma [PPT - 115 KB]
• Disability: The Case of Hungary [PPT - 51 KB], presented by Éva Gárdos

 

An Examination of the ICF Model

The ICF model and its relationship to disability measures was discussed.

• The ICF and Statistics on Disability and Health [PPT - 619 KB], presented by Marguerite Schneider
• Overview and Recent Developmental Work in Europe [PPT - 286 KB], presented by Emmanuelle Cambois (Euro-Reves)
• The ICF Model and Survery-Instruments, presented by Niels Rasmussen [PPT - 103 KB]

 

U.N. Standard Disability Tables

Concepts, definitions, and classifications of disability were reviewed as well as the suggested approach to collecting data on disability in censuses.

• Revising the United Nations Census Recommendations on Disability [PDF - 150 KB], by Margaret Mbogoni and Angela Me, United Nations Statistics Division [PPT - 80 KB]

 

Global Measures of Disability

This session focused on the types and numbers of questions that could be useful in census formats. The impact of the cut point associated with limited questions on estimates of disability was of particular concern.

• Australian Experience in Developing Disability Questions for the Census [PPT - 130 KB], presented by Joanne Hillerman
• Disability Census Questions, the Perspective of Developing Countries [PDF - 90 KB], by Margaret Mbogoni , United Nations Statistics Division
  
  • The ICF model and survey-instruments [PPT - 69 KB]

 

The Relationship of Global Measures to the ICF

This session examined the relationship of disability measures currently in use to the ICF.

• Global Measures of Disability: Statistics Canada’s Experience So Far... [PDF - 56 KB], by Renee Langlois, Statistics Canada
  [PPT - 73 KB]
• ABS Approach to Collecting Disability Data and Relationship to the ICF [PDF - 30 KB]: A joint paper prepared by the Australian Bureau of Statistics (ABS) and the Australian Institute of Health and Welfare (AIHW), presented by Joanne Hillermann [PPT - 130 KB]

 

Exploring the Confounding Function of Assistive Device Use

This session explored the identification of disability and whether the lack of specification of assistive device use alters a true count of what is happening within a population. Does the lack of accurate consideration of all devices and their use compromise our measures? How does this impact on global indicators?

• Exploring the Impact of Assistive Device Use on Disability Measurement [PPT - 125 KB], presented by Jennifer Madans

 

What are the Unique Cultural Practices that Influence the Nature of the Environment or Prescribe or Proscribe Participation?

To ask participation questions in a culture that prohibits certain types of participation to certain members of the population is an exercise in futility. These presentations address the cultural attitudes within which the questions must be framed. Does this problem constitute a barrier to collecting comparable data?

• Cultural Practices and Environment and Participation Assessment [PPT - 138 KB], presented by Marguerite Schneider

 

What are the Unique Cultural Issues that Act as Barriers to Collecting Data? Are There Common Barriers to Data Collection that Occur Cross-Culturally?

• Language and Cultural Issues in Surveys of the European Union [PDF - 99 KB], presented by H. Van Oyen, Scientific Institute of Public Health, Brussel [PPT - 63 KB]
• Disability Related Question in Indian Census [PPT - 148 KB], submitted by V.M. Tamhane

 

Executive Summary

• Summary Report to the UN Statistical Commission (33rd Session met March 5-8, 2002)
• Final Report of the First Meeting [PDF - 80 KB]

 

Links to Other Useful Sites

• The Standard Rules on the Equalization of Opportunities for Persons with Disabilities
• International Classification of Functioning, Disability and Health

 

Participants

Participant List (as of 1/25/2002)

Participant	Country
Antonio Escobedo Aguirre	Mexico
Genara Rivera Araujo	Peru
Modesto F.C. Banda	Zambia
Alicia Bercovich	Brazil
Jacques Bonte	Belgium
Bryan Boxill	Grand Cayman, B.W.I
Vittoria Buratta	Roma, Italy
Gary Catlin	Ottawa, Canada
Montserrat Lopez Cobo	Madrid, Spain
Gunilla Davidson	Sweden
Elena De Palma	Italy
Marijke de Kleijn-de Vrankrijker	Netherlands
Marleen de Smedt (PG)	EUROSTAT
Bothaina El-Deeb	Egypt
Eva Gardos	Budapest, Hungary
Enrique Garrido	Mexican NGO
Nora Groce	U.S. / Speaker
Gugu Gule	Pretoria, South Africa
Mr. B.Z. Gumede	African Rehabilitation Institute
Van Oyen Herman	Brussels, Belgium
Joanne Hillerman (PG)	Australia
Ba Ibrahima	Cote D’Ivoire
Ronell Ince	South Africa
Gareth Jones	U.S. / UNICEF
Abdulrahaman M. Kaimu	Tanzania
Herbert B.S. Kandeh	Sierra Leone
David Keer	U.S. / NIDRR
Renee’ Langlois	Ottawa, Canada
Don Lollar	U.S. / CDC
Richard Madden	Australia
Regies Mamina	Harare, Zimbabwe
Grazyna Marciniak	Poland
Luis Hernandez Marte	Dominican Republic
Sebenzile Matsebula	South Africa
Margaret Mbogoni	UN
Angela Me	UN
Lylian Mires	Chili
Christian Monteil	France
Kassim Abdallah Mondoha	Comoros
Anu Muuri	Finland
Fallah Nassiri	Tehran, Iran
Helen Nviiri	Entebbe, Uganda
Timothy Obizoba Offor	Nigeria
Fredick Otieno Okwayo	Nairobi, Kenya
Ari Paltiel	Israel
Niels Kr. Rasmussen	Denmark
Romona Martinez de Rodriguez	Dominican Republic
Pacifique Ruty	Rwanda
Yoichi Sakamoto	Japan
Tokutaro Sato	Japan
Margie Schneider	Speaker
Florence Nayiga Sekabira (PG)	Uganda
Yiu-cho Siu	Hong Kong, China
Mr. V.M. Tamhane	India
Steven Tingus	U.S. / NIDRR
Ahmadu Umaru	Nigeria
Bedirhan Ustun	WHO
Herman Van Oyen	Belgium
Nizeyimana Vianney	Kigali, Rwanda
Romulo A. Virola	Philippines
Moses L.J. Williams	Sierra Leone

 

 

Contacts

Jennifer Madans
Associate Director for Science
National Center for Health Statistics
3311 Toledo Road, Room 7207
Hyattsville, MD 20782
Phone: 301-458-4500
Fax: 301-458-4020
E-mail: JMadans@cdc.gov

Barbara M. Altman
Special Assistant for Disability Statistics
National Center for Health Statistics
3311 Toledo Road, Room 6111
Hyattsville, MD 20782
Phone: 301-458-4654
Fax: 301-458-4038
E-mail: BAltman@cdc.gov

Beth Rasch
Service Fellow
National Center for Health Statistics
3311 Toledo Road, Room 6110
Hyattsville, MD 20782-2003
Phone: 301-458-4248
Fax: 301-458-4037
E-mail: ERasch@cdc.gov

 

Executive Summary

• Executive Summary of the First WG Meeting for the UN Statistical Commission [PDF - 19 KB]