Autism-Europe

Autism-Europe is an international non-profit association located in Brussels, Belgium. The association's mission is to advance the rights of people with autism in all areas of life through advocacy work and raising awareness. This includes representing people with autism in European institutions, promoting access to habilitation and education, and promoting the exchange of information, good practices, and experiences.

Autism-Europe
MottoImproving quality of life of autistic people and their families
Formation1983 (1983)
Founded atGhent, Belgium
Region
Europe
Official language
English, French
Websitehttp://www.autismeurope.org/

Autism-Europe operates as an umbrella organisation, bringing together 80 autism organisations in 34 European countries, including 26 European Union member states.[1]

History

Beginnings

Autism-Europe was founded in 1983 by a group of national and regional parents' associations. It was established following the first European Conference of Associations of Parents in Ghent, Belgium, in 1980.[2]

Under its first president, Jean Charles Salmon, the organisation identified its three main functions as monitoring, advocacy and recommendation; more specifically:

  1. to closely observe the treatment of, and care provided for, people with autism;
  2. to advocate to those responsible for the treatment and status of people with autism;
  3. to create proposals with the aim of promoting the well-being and interests of people with autism.[2]

Autism-Europe was founded in the context of a changing public understanding of all disabilities. A new conception of disability was emerging, called "the social model of disability" (as opposed to the "medical model of disability"), which aimed to redefine disability to focus on the relationship between people and their environment. This understanding is based on the idea that social barriers must be removed to enable people with disabilities to participate fully in society, becoming active members who can represent themselves and exercise their rights.[3]

1996: Charter of rights for people with autism

In 1992, Autism-Europe members created the "Charter for Persons with Autism", which outlined the rights of autistic people in all aspects of life.[4] Following that, Autism-Europe decided that for the charter to have relevance at the European level, it must also have political endorsement. Autism-Europe therefore campaigned for political support and approval for the charter. The charter was adopted as a written declaration by the European Parliament in 1996.[5]

2004: Collective complaint on the right to education in France

Autism-Europe launched the first collective complaint before the Council of Europe on behalf of people with disabilities in 2002 (Autism-Europe v. France, complaint No. 13/2002). Autism-Europe was represented by Evelyne Friedel, a lawyer with a son who has autism (Friedel became the president of Autism-Europe in 2008, serving to 2011).

In 2004, the Council of Europe publicly announced its condemnation of France for having failed its educational obligations to persons with autism under the revised European Social Charter. The Council of Europe's decision put pressure on France and other countries in the Council of Europe to live up to their obligations under the European Social Charter by providing education for people with autism, both within mainstream and specialised schools.[6]

Following the decision, the French government launched its first "Autism Plan", which included measures to create new facilities and include children with autism in mainstream schools.[7]

2006: United Nations Convention on the Rights of Persons with Disabilities

In 2006, after four years of negotiations, the United Nations General Assembly adopted a new convention specifically for people with disabilities. The Convention on the Rights of Persons with Disabilities reaffirms that all people with all types of disabilities, including autism, must enjoy all human rights and fundamental freedoms. It is legally binding for countries that ratify it.[8]

Autism-Europe took part in the consultation process leading to the drafting and adoption of the UN Convention, and continues taking part in the review process of the European Union by the United Nations.[9] The Convention has since been ratified by most countries in Europe, as well as the European Union, and therefore must be implemented in these countries and within the EU's fields of competence.

2007: The Council of Europe’s recommendations on education

Following the collective complaint on the right to education in France in 2002, the Council of Europe established a group of experts – of which Autism-Europe was a member – to look into the issue of access to education for children with autism.[10] This resulted in the Council of Europe's "Resolution ResAP (2007)4 on the education and social inclusion of children and young people with autism", which was adopted as a recommendation in 2009 (CM/ Rec(2009)9).[11]

While this recommendation is not binding for the members of the Council of Europe, it applies pressure to implement policies promoting access to education and the inclusion of people with autism.

2015: European Parliament’s Written Declaration on Autism

In September 2015, the European Parliament officially adopted the Written Declaration on Autism, co-signed by 418 Members of the European Parliament. The document, co-drafted by Autism-Europe, calls on the European Union and its member states to adopt a European strategy for autism that will support accurate detection and diagnosis across Europe, promote evidence-based treatment and support services for all ages, foster research and prevalence studies, and encourage the exchange of best practices.[12]

Activities

Autism-Europe operates as an umbrella organisation, bringing together 80 member autism organisations in 34 European countries, including 26 European Union Member States.[1] It works at raising public awareness and influencing European decision-makers on issues relating to the rights of people with autism and other disabilities.

Autism-Europe has established a structured dialogue with the European Institutions and is also active with the World Health Organization and the United Nations. It also participates as a non-governmental organisation in the Council of Europe.[13]

Autism-Europe's main activities revolve around its advocacy work at the EU and national level, awareness-raising campaigns, and dissemination of information. Its main publication is its biannual LINK magazine, which presents news on the subject of autism and member activity. Autism-Europe also publishes research publications to support its advocacy activities, which have recently focused on education,[14] employment[15] and ageing.[16] Every three years, Autism-Europe organises an international congress dedicated to sharing knowledge regarding advances in the field of autism.

References
  1. "Our members". Autism-Europe. 7 June 2016. Retrieved 2016-09-18.
  2. "1983–1992" (PDF). LINK (59): 4. June 2013.
  3. Volkmar, Fred R. (2013). Encyclopedia of Autism Spectrum Disorders. New York, NY: Springer New York. doi:10.1007/978-1-4419-1698-3. ISBN 978-1-4419-1698-3.
  4. Autism-Europe. "Charter for Persons with Autism" (PDF). Archived from the original (PDF) on 2016-07-05. Retrieved 2016-07-11.
  5. Matthews, Pat (1996). "The Charter of Rights for Persons with Autism". Retrieved 7 July 2016.
  6. "International Association Autism Europe v. France, Complaint No. 13/2002". ESCR-net. 2002. Retrieved 7 July 2016.
  7. Haroche, Aurélie Haroche (2014). "Scolarisation des enfants autistes: la France tancée à nouveau par le Conseil De l'Europe" [Education of autistic children: France scolded again by the Council Of Europe] (in French). Retrieved 7 July 2016.
  8. United Nations. "Convention on the rights of persons with disabilities". Retrieved 7 July 2016.
  9. "United Nations delivers Observations on the implementation of the rights of people with disabilities by the European Union" (PDF). LINK (63): 7. June 2015. Archived from the original (PDF) on 2016-08-06. Retrieved 7 July 2016.
  10. Council of Europe (2007). "Partial Agreement in the Social and Public Health Field". Retrieved 8 July 2016.
  11. Council of Europe (2007). "Resolution ResAP(2007)4 on the education and social inclusion of children and young people with autism spectrum disorders". Retrieved 8 July 2016.
  12. "Labour MEPs place autism high on Europe's agenda". Malta Today. 2015. Retrieved 7 July 2016.
  13. "Conference of INGOs". Archived from the original on 3 October 2016. Retrieved 27 July 2016.
  14. "Autisme: l'école interdite" [Autism: The Forbidden School]. Metro News (in French). 2015. Retrieved 7 July 2016.
  15. "L'Oreal punta ad assumere due ragazzi autistic" [L'Oreal aims to take two autistic boys]. La Stampa (in Italian). 2014. Retrieved 7 July 2016.Centre de Ressources Autisme (2015). "L'association Autisme Europe publie deux rapports sur le thème de l'emploi des personnes avec autisme" [The Association Autism Europe publishes two reports on the subject of the employment of people with autism] (in French). Retrieved 7 July 2016.INSHEA (2014). "Rapport: Autisme et travail" [Report: Autism and work] (in French). Retrieved 7 July 2016.
  16. Salman, Saba (15 July 2013). "We need to know and do more about ageing with autism". The Guardian. ISSN 0261-3077. Retrieved 7 July 2016.
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